Calgary Flames Assistant GM Chris Snow diagnosed with ALS
Posted Dec 18, 2019 5:36 pm.
This article is more than 5 years old.
CALGARY (660 NEWS) — Some sad news coming from the Calgary Flames organization on Wednesday.
Assistant GM for the hockey club, Chris Snow, has been diagnosed with ALS.
Snow’s wife, Kelsie, made the announcement in a post on the Flames website Wednesday afternoon.
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In the note, Snow said the family is holding on to hope as they enrol Chris in “a clinical trial for the most encouraging ALS gene therapy treatment to come along.”
Just over one year ago, Chris lost his father to ALS. The note also mentions how Chris lost both his paternal uncles and his 28-year-old cousin to this disease.
Chris has been in the clinical trial for several months now and say in the note that while they aren’t sure if he is taking placebos or the real drug, his condition is not improving.
Snow adds the disease has begun to take it’s early effects on Chris’ body as he experiences issues with his right hand and right forearm.
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The family asks for any help they can get in the fight by asking for donations to Chris’ cause.
“Fewer than 20,000 people in North America are estimated to be living with ALS. Of them only 2,000 are living with familial ALS, the kind caused by a gene passed down within a family,” the note goes on to say.
To view Chris’ donation page, click here.
Beyond donations, the family asked for only one thing.
“Believe in this treatment. Our hope is rooted in the results we believe we are seeing and in the optimism expressed by doctors who have spent their careers studying this disease. As our neurologist said after Chris received his first dose in the trial – ‘We’re here to make history.'”
